I just looked at him, I mean, this sounds like what I wrote in Capsules of Hope: Survival Guide for Caregivers. Only he's talking builders and I'm talking doctors. It's like why not, it works in everything. The food industry, who teaches our kids, and of course, what about the babysitters? To be a good consumer we need to give out positive feedback and let others know when something isn't done correctly or a company doesn't deliver what they've promised. Okay, so how does that pertain to caregivers?
Husband has switched roles with me. When he battled Psuedomyxoma Peritonei (PMP), I served as caregiver. I had no idea I should ask how many PMP patients a doctor had treated or what other patients thought about the care they received. Then this last month when I found a lump, the physicians assistant said I needed to see a surgeon, in a state of "I can't believe this is happening," I never thought about asking for a specialist for possible breast cancer, at least at first.
This I can tell you, the difference between the first general surgeon and Dr. Silva, Surgical Oncologist is major. Now I've not only written the instructions for others about the importance of knowing your physician, I've lived the journey and beat myself up because I didn't ask more questions. In this last month husband has learned first hand, that when the patient is in a state of shock and disbelief, the caregiver must ask questions. This I know, that man of mine is doing a good job. Together we have reaffirmed the importance of knowing your physician, this is your life. You need the best in the business for you in your current situation.
- Search for a support group, often they have a list of the best doctors for your illness. Be aware, not everyone connects emotionally to a doctor. Check all options before being persuaded to use a doctor or not.
- Use the internet. Has the doctor published articles about your medical condition? How long has he been treating your type of problem? Are there any negatives posted about him?
- HIPAA prohibits the doctor from giving you names of patients for reference, but you can google possible feedback about the doctor, you might be surprised at what you find.
- Ask the doctor, his staff, his assistant if they have patients who will talk to you about the care they received under this doctor. (When Dr. Loggie treated Gary in 2004, we gave our name and number to the office and said, tell patients to call us.)
- Check the local newspaper. Often, especially if the doctor is treating rare conditions, articles have been written-good and bad.
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